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Advance care planning & gezamenlijke besluitvorming

  • Vastgesteld: 28-11-2022
  • Regiehouder: NVK

Literatuur

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  4. Rietjens JAC, Sudore RL, Connolly M, van Delden JJ, Drickamer MA, Droger M, et al. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. Lancet Oncol. 2017;18(9):e543-e51.
  5. Lyon ME, Garvie PA, Briggs L, He J, Malow R, D’Angelo LJ, et al. Is it safe? Talking to teens with HIV/AIDS about death and dying: a 3-month evaluation of Family Centered Advance care (FACE) planning–anxiety, depression, quality of life. Hiv/aids (Auckland, NZ). 2010;2:27.
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  13. Lotz JD, Jox RJ, Borasio GD, Fuhrer M. Pediatric advance care planning from the perspective of health care professionals: a qualitative interview study. Palliat Med. 2015;29(3):212-22.
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  20. Daxer M, Monz A, Hein K, Heitkamp N, Knochel K, Borasio GD, et al. How to Open the Door: A Qualitative, Observational Study on Initiating Advance Care Discussions with Parents in Pediatric Palliative Care. J Palliat Med. 2021.
  21. Gilissen J, Pivodic L, Smets T, Gastmans C, Vander Stichele R, Deliens L, et al. Preconditions for successful advance care planning in nursing homes: A systematic review. Int J Nurs Stud. 2017;66:47-59.
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  24. Back AL, Arnold RM. "Yes it's sad, but what should I do?" Moving from empathy to action in discussing goals of care. J Palliat Med. 2014;17(2):141-4.
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  43. Cicero-Oneto CE, Valdez-Martinez E, Bedolla M. Decision-making on therapeutic futility in Mexican adolescents with cancer: a qualitative study. BMC Med Ethics. 2017;18(1):74.
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  51. Mitchell S, Spry JL, Hill E, Coad J, Dale J, Plunkett A. Parental experiences of end of life care decision-making for children with life-limiting conditions in the paediatric intensive care unit: a qualitative interview study. BMJ Open. 2019;9(5):e028548.
  52. Fahner J, Rietjens J, van der Heide A, Milota M, van Delden J, Kars M. Evaluation showed that stakeholders valued the support provided by the Implementing Pediatric Advance Care Planning Toolkit. Acta Paediatr. 2021;110(1):237-46.
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