Referenties


Albers G (2010)
Albers G, Echteld MA, de Vet HC, Onwuteaka-Philipsen BD, van der Linden MH, Deliens L. Evaluation of quality-of-life measures for use in palliative care: a systematic review. Palliat Med. 2010;24(1):17-37.
 
Basch et al (2017)
Basch et al. 2017 Web-Based System for Self-Reporting Symptoms Helps Patients Live Longer; Journal of american society of clinical oncology.
 
Bauwens S (2009)
Bauwens S, Baillon C, Distelmans W et al. The 'Distress Barometer': validation of method of combining the Distress Thermometer with a rated complaint scale. Psychooncology. 2009 May;18(5):534-42.
 
Bestall JC (1999)
Bestall JC, Paul EA, Garrod R, et al. Usefulness of the Medical Research Council (MRC) dyspnoea scale as a measure of disability in patients with chronic obstructive pulmonary disease. Thorax; 1999; 54: 581-586.
 
Bjelland I (2002)
Bjelland I, Dahl AA, Haug TT, Neckelmann D. The validity of the Hospital Anxiety and Depression Scale: An updated literature review.J of Psychosomatic Research 2002; 52(2): 69-77.
 
Boddaert M (2015)
Boddaert M, Douma J, van Aalst B, Bijkerk M, Brinkman A, Brom L, Degenaar A. Palliatieve zorg in Nederlandse ziekenhuizen. Resultaten 2015.
 
Boelen (2001)
Boelen, P. A., Keijser, J. de, & Bout, J. van den (2001). Psychometrische eigenschappen van de Rouw VragenLijst (RVL). Gedrag& Gezondheid, 29, 172-185.
 
Boerlage AA (2013)
Boerlage AA, Masman AD, Hagoort J, Tibboel D, Baar FP, van Dijk M. Is pain assessment feasible as a performance indicator for Dutch nursing homes? A cross-sectional approach. Pain Manag Nurs, 2013; 14(1): 36-40.
 
Bole o-Tome C (2012)
Bole o-Tome C, Monteiro-Grillo I, Camilo M, and Ravasco P. Validation of the Malnutrition Universal Screening Tool (MUST) in cancer. British Journal of Nutrition (2012), 108, 343–348.
 
Borges et al (2009)
Borges et al. Comparison of the nutritional diagnosis, obtained through different methods and indicators, in patients with cancer. Nutr Hosp. 2009;24(1):51-55.
 
Boyd K (2010)
Boyd K, Murray SA. Recognising and managing key transitions in end of life care. BMJ 2010.
 
Butow P et al 2015 (2015)
Butow P et al 2015. Clinical pathway for the screening, assessment and management of anxiety and depression in adult cancer patients: Australian guidelines Psychooncology.
 
Bruera E (1991)
Bruera E, Kuehn N, Miller MJ, The Edmonton Symptom Assessment System (ESAS): a simple method for the assessment of palliative care patients. J Palliat Care (1991);7(2):6-9.
 
Dennis M (2012)
Dennis M, Kadri A, Coffey J. Depression in older people in the general hospital: a systematic review of screening instruments. Age Ageing. 2012 Mar;41(2):148-54.
 
Dent E (2016)
Dent E, Kowal P, Hoogendijk E. Frailty measurement in research and clinical practice: A review. Eur J Intern Med. 2016 Jun;31:3-10.
 
Detroyer E (2014)
Detroyer E, Clement PM, Baeten N, Pennemans M, Decruyenaere M, Vandenberghe J, Menten J, Joosten E, Milisen K. Detection of delirium in palliative care unit patients: a prospective descriptive study of the Delirium Observation Screening Scale administered by bedside nurses. Palliat Med. 2014 Jan;28(1):79-86.
 
Donovan K (2014)
Donovan K, Grassi L, McGinty H et al. Validation of the distress thermometer worldwide: state of the science. Psychooncology. 2014 Mar;23(3):241-50.
 
Ethan Basch (2017)
Ethan Basch, MD,MSc, Allison M. Deal, MS, Amylou C. Dueck, PhD et al. Overall Survival Results of a Trial Assessing Patient-Reported Outcomes for Symptom Monitoring During Routine Cancer Treatment. JAMA 2017 318, 2.
 
Exel van JA (2004)
Exel van JA, Scholte WJM, Brouwer WBF et al. Instruments for assessing the burden of informal caregiving for stroke patients in clinical practice: a comparison of CSI, CRA, SCQ and self-rated burden. Clinical Rehabilitation, 2004; 18: 203–214.
 
Extermann M (2012)
Extermann M. Integrating a geriatric evaluation in the clinical setting. Semin Radiat Oncol. 2012 Oct;22(4):272-6.
 
Fuchs-Lacelle S (2004)
Fuchs-Lacelle S, Hadjistavropoulos T. Development and preliminary validation of the pain assessment checklist for seniors with limited ability to communicate (PACSLAC).Pain Manag Nurs. 2004 Mar; 5(1): 37-49.
 
Goodarzi ZS (2017)
Goodarzi ZS, Mele BS, Roberts DJ, et al. Depression Case Finding in Individuals with Dementia: A Systematic Review and Meta-Analysis. J Am Geriatr Soc. 2017 Feb 2.
 
Graaf de E et al (2017)
Graaf de E et al. 2017 Symptom intensity of hospice patients: A longitudinal analysis of concordance between patients' and nurses' outcomes. J Pain Symptom.
 
Gricco A (1984)
Gricco A, Long CJ, et al. Investigation of the Karnofsky performance status as measure of quality of life. Health Psychol 1984: 3:129-42.
 
Gupta (2014)
Gupta, N., Pinto, L. M., Morogan, A., et al. The COPD assessment test: a systematic review. Eur Respir J 2014: 44: 873-884.
 
Guyatt GH (1987)
Guyatt GH, Berman LB, Townsend M, Puglsey SO, Chambers LW. A measure of quality of life for clinical trials in chronic lung disease. Thorax 1987;42:773-778.
 
Hamaker ME (2012)
Hamaker ME, Jonker JM, de Rooij SE et al. Frailty screening methods for predicting outcome of a comprehensive geriatric assessment in elderly patients with cancer: a systematic review. Lancet Oncol. 2012 Oct;13(10):e437-44.
 
Hanson LC (2010)
Hanson LC, Scheunemann LP, Zimmerman S, Rokoske FS, Schenck AP. The PEACE project review of clinical instruments for hospice and palliative care. J palliat Med, 2010; 13(10):1253-60.
 
Hasselaar J (2016)
Hasselaar J, van der Heide A, Onwuteaka-Philipsen B. Kennissynthese Palliantie. Rapport in het kader van het ZonMw programma Palliatieve Zorg, 2016.
 
Helfenstein SF
Helfenstein SF, Uster A, Rühlin M, et al. Are Four Simple Questions Able to Predict Weight Loss in Outpatients With Metastatic Cancer? A Prospective Cohort Study Assessing the Simplified Nutritional Appetite Questionnaire. Nutrition and Cancer, 68:5, 743-749.
 
Herk van R (2007)
Herk van R, van Dijk M, Baar FP, Tibboel D & de Wit R. Observation scales for pain assessment in older adults with cognitive impairments or communication difficulties. Nursing Research, 2007; 56(1), 34–43.
 
Herk van R (2009)
Herk van R, MA. van Dijk M, PhD, van Tibboel D, Prof PhD et al. The Rotterdam Elderly Pain Observation Scale (REPOS), a New Behavorial Pain Scale for Non-Communicatie Adults and Cognivity Impaired Elderly Person. Journal of Pain Management, 2009; 367-378.
 
Hewlett S (2011)
Hewlett S, Dures E, Almeidi C. Measures of Fatigue. American College of Rheumatology 2011 63, (11) 263–286.
 
Highet G (2013)
Highet G, Crawford D, Murray SA, Boyd K. Development and evaluation of the Supportive and Palliative Care Indicators Tool (SPICT): a mixed-methods study. BMJ Support Palliative Care, 2013 1-6.
 
Ho F (2008)
Ho F, Lau F, Downing MG et al. A reliability and validity study of the Palliative Performance Scale. BMC Palliative Care, 2008; 7: 10.
 
IKNL
IKNL. www.pallialine.nl
 
IKNL/Palliactief (2017)
IKNL/Palliactief. Kwaliteitskader Palliatieve Zorg Nederland, IKNL/Palliactief, 2017.
 
Karnofsky DA
Karnofsky DA, Burchenal JH. The clinical evaluation of chemotherapeutic agents in cancer. In: Macleod CM, ed. Evaluation of chemotherapeutic agents. New York: Columbia University Press, 949:191-205.
 
Kaiser MJ (2009)
Kaiser MJ, Bauer JM, Ramsch C, et al. Validation of the Mini Nutritional Assessment short-form (MNA-SF): a practical tool for identification of nutritional status. J Nutr Health Aging. 2009;13(9): 782-8.
 
Kalisvaart C (2005)
Kalisvaart C, Primary prevention of delirium in the elderly, proefschrift, AMC Amsterdam 2005.
 
Kessel van P (2015)
Kessel van P, Hendriks M, van der Hoek L, Plass AM. Ontwikkeling van de Care Related Quality of Life voor Chronisch Hartfalen (CaReQoL CHF). Een vragenlijst voor het meten van de ervaren uitkomsten van chronische zorg, NIVEL, 2015.
 
Kragt I (2007)
Kragt I, Overbelasting van mantelzorgers. Op zoek naar het beste meetinstrument. Universiteit van Twente, 2007 (scriptie).
 
Krikorian A (2015)
Krikorian A and Román JP 2015 Current dilemmas in the assessment of suffering in palliative care. Palliat Support Care.
 
Leontjevas R (2012)
Leontjevas R, Gerritsen DL, Vernooij-Dassen MJ, et al. Comparative validation of proxy-based Montgomery-Åsberg depression rating scale and cornell scale for depression in dementia in nursing home residents with dementia. Am J Geriatr Psychiatry, 2012 Nov; 20(11): 985-93.
 
Mendoza T (1999)
Mendoza T, Wang XS, Cleeland CS, et al. The rapid assessment of fatigue severity in cancer patients: use of the Brief Fatigue Inventory. Cancer 85: 1186-1196, 1999.
 
Munch T (2006)
Munch T, Stromgren A, Pedersen L. Multidimensional measurement of fatigue in advanced cancer patients in palliative care: an application of the Multidimensional Fatigue Inventory. Journal of Pain and Symptom Management 2006. (31)6: 533-541.
 
Neelemaat F (2010)
Neelemaat F, Meijers J, Kruizenga H, van Ballegooijen H, et al. Comparison of five malnutrition screening tools in one hospital inpatient sample. Journal of Clinical Nursing (2010), 20, 2144–2152.
 
Nijs de E et al (2011)
Nijs de E et al. 2011 In de palliatieve zorg zijn symptomen leidend. Monitoren helpt bij patiëntenzorg, beleid, onderwijs en onderzoek. Oncologica.
 
Oken M M (1982)
Oken M M, Creech R H, Tormey D C et al. Toxicity And Response Criteria Of The Eastern Cooperative Oncology Group. Am J Clin Oncol 1982; 5:649-655.
 
Oldenmenger WH (2005)
Oldenmenger WH, Stronks DL, Terwiel CTM et al. Naar een landelijke pijnanamnese Psychometrische kwaliteiten. Nederlands Tijdschrift voor Pijn & Pijnbestrijding. 2005, 25, 4-12.
 
Pot (1995)
Pot, A.M., van Dyck, R., en D.J.H. Deeg (1995). Ervaren druk door informele zorg; constructie van een schaal. Tijdschrift voor Gerontologie en Geriatrie 1995; 26,214-219.
 
Schag CC (1984)
Schag CC, Heinrich RL, Ganz PA. Karnofsky performance status revisited: reliability, validity, and guidelines. J Clin Oncol 1984;2(3):187–93.
 
Schuurmans M (2003)
Schuurmans M, Shortridge-Baggett L, Duursma S. The Delirium Observation Screening Scale: a screening instrument for delirium. Res Theory Nurs Pract. 2003. Spring;17(1):31-50.
 
Smets A (1995)
Smets A, Garssen B, Bonke B et al. The multidimensionaal fatique inventory (MFI)psychometric qualities of an instrument to assess fatque. Journal of Psychosomatic Research,1995.39 (5): 315-325.
 
Smid DE (2017)
Smid DE, Franssen FM, Houben-Wilke S, et al. Responsiveness and MCID Estimates for CAT, CCQ, and HADS in Patients With COPD Undergoing Pulmonary Rehabilitation: A Prospective Analysis. J Am Med Dir Assoc. 2017 Jan;18(1):53-58.
 
Sonis (1999)
Sonis, et al. Validation of a new scoring system for the assessment of clinical trial research of oral mucositis induced by radiation or chemotherapy. Mucositis Study Group. Cancer. 1999 15;85(10):2103-13.
 
Spinhoven PH (1997)
Spinhoven PH, Ormel J, Sloekers PPA, Kempen GIJM.A validation study of the Hospital Anxiety and Depression Scale (HADS) in different groups of Dutch subjects. Psychological Medicine 1997; 27(2): 363-370.
 
Steen van der JT (2015)
Steen van der JT, Sampson EL, Van den Block L, et al. Tools to Assess Pain or Lack of Comfort in Dementia: A Content Analysis. J Pain Symptom Manage. 2015 Nov; 50(5): 659-75.
 
Sutton J (2016)
Sutton J, Gould R, Daley S et al. Psychometric properties of multicomponent tools designed to assess frailty in older adults: A systematic review. BMC Geriatr. 2016 Feb 29;16:55.
 
Trajkovic-Vidakovic M (2012)
Trajkovic-Vidakovic M et al. 2012 Symptoms tell it all: a systematic review of the value of symptom assessment to predict survival in advanced cancer patients. Crit Rev Oncol Hematol.
 
Teunissen et al (2006)
Teunissen et al. 2006 Prognostic significance of symptoms of hospitalized advanced cancer patients.
 
Tuinman M (2008)
Tuinman M, Gazendam-Donofrio S, Hoekstra-Weebers J. Screening and referral for psychosocial distress in oncologic practice Cancer 2008;113(4):870-8.
 
Twycross R (1990)
Twycross R. and Lack SA. 1990; 2001 Appropriate assessment and treatment In: Therapeutics in terminal cancer. Churchill Livingstone. London.
 
Vellucci R (2016)
Vellucci R, Fanelli G, Pannuti R et al. What to Do, and What Not to Do, When Diagnosing and Treating Breakthrough Cancer Pain (BTcP): Expert Opinion. Therapy in Practise 2016. 315-330.
 
Veldhuisen H (2016)
Veldhuisen H. et al. 2016 Assessment of anxiety in advanced cancer patients: a mixed methods study. Int J Palliat Nurs.
 
Virik K (2002)
Virik K, Glare P. Validation of the palliative performance scale for inpatients admitted to a palliative care unit in Sydney, Australia. J Pain Symptom Manage 2002; 23(6): 455–7.
 
Wancata J (2006)
Wancata J, Alexandrowicz R, Marquart B et al. The criterion validity of the Geriatric Depression Scale: a systematic review. Acta Psychiatr Scand. 2006 Dec;114(6):398-410.
 
Webber K (2014)
Webber K, Davies A, Zeppetella G et al. Development and Validation of the Breakthrough Pain Assessment Tool (BAT) in Cancer Patient. Journal of pain and symp management 2014. 48(4) 619-631.
 
Wedzicha JA (1998)
Wedzicha JA, Bestall JC, Garrod R, et al. ; Randomized controlled trial of pulmonary rehabilitation in severe chronic obstructive pulmonary disease patients, stratified with the MRC dyspnoea scale. Eur Respir J, 1998; 12: 363–369.
 
Weldam (2013)
Weldam, SWM, Schuurmans MJ, Liu R, Lammers JJ. Evaluation of Quality of Life instruments for use in COPD care and research: A systematic review. International Journal of Nursing Studies 50 (2013) 688–707.
 
Wilson MG (2005)
Wilson MG, Thomas, DR, Rubenstein LZ, et al. Appetite assessment: simple appetite questionnaire predicts weight loss in community-dwelling adults and nursing home residents. Am J Clin Nutr 2005;82:1074–81.
 
Wrede-Seaman L (1999)
Wrede-Seaman L 1999 Symptom management algorithms for palliative care. American Journal of Hospice and Palliative Care.
 
Zhou Z (2017)
Zhou Z, Zhou A, Zhao Y, Chen P Evaluating the Clinical COPD Questionnaire: A systematic review. Respirology, 2017 Feb; 22(2): 251-262.
 
Zigmond AS (1983)
Zigmond AS and Snaith RP. The Hospital Anxiety and Depression Scale.Acta Psychiatrica Scandinavica 1983; 67 (6): 361-370.
 
ZonMw (2009)
ZonMw. Besluitvorming in de Palliatieve Fase 2009. Goed Voorbeeld ZonMw.
 
Zwakhalen SM (2006)
Zwakhalen SM, Hamers JP, Berger MP. The psychometric quality and clinical usefulness of three pain assessment tools for elderly people with dementia. Pain, 2006 Dec 15;126(1-3): 210-20.
 
Zwakhalen SM (2009)
Zwakhalen SM, Koopmans RT, Geels PJ et al. The prevalence of pain in nursing home residents with dementia measured using an observational pain scale. Eur J Pain. 2009 Jan;13(1):89-93.
 
Zwakhalen SM (2012)
Zwakhalen SM, van der Steen JT, Najim MD. Which score most likely represents pain on the observational PAINAD pain scale for patients with dementia? J Am Med Dir Assoc. 2012 May;13(4):384-9.